Worry is heavy one my mind! Control is a Three Letter Word! Leukemia and graft vs. host disease sucks!

 This past week I went to see my primary care cancer doctor nurse practitioner, because my doctor was out of the office. While at my appointment she noticed that my blood pressure seemed a little low, and after describing me blacking out and falling multiple times, she wanted to do a few tests. She did the stroke test first, then checked my ears (which had fluid in them), I had an EKG, then my blood pressure was taken three times: once while laying down, waited 2 minutes then it was taken as I was sitting up, then waited 2 minutes and it was taken while I was standing. She became concerned because my blood pressure was under 100 (top number) while I was sitting, and in the high 80's (top number) while standing. So she had one of her staff push me in a wheelchair over to the emergency department at the hospital. It was packed with patients waiting to be seen. Once the medical staff from my doctors office explained why I needed to be seen, the ER staff took my blood pressure (seated), Pulse ox, and temperature.  Then they pushed me in a wheelchair over to the side out of the way while I waited on a room to open up. After several hours of waiting I was taken to triage. They drew my blood, then took me to radiology to have X-rays done on my lungs and heart. Then I was taken back out into the waiting room, where I sat for 7 hours. 

I eventually got up and asked them to take the IV out of my are because I was not going to wait any longer. That they had taken the tests that my doctors office wanted and once they got the results they could tell me what they wanted me to do. So the nurse took the IV out and apologized for the wait. I told her that I understood that they were busy, and hoped the rest of their day wasn't so hectic,

I was told to monitor my glucose levels in the morning before eating or drinking anything and once before bed, and my blood pressure when I first wake up (laying, sitting, standing) and before I go to bed. So I have been doing as they advised. So far my glucose levels have been between 90 and 101. But my blood pressure is still dropping low when I stand and my pulse is higher when I stand. So I am getting concerned that I may have something wrong with my heart. I won't know anything until I see my primary cancer doctor on Tuesday. 

I checked my MyChart and I have 4 doctors appointments this coming week, and an MRI of my brain. I am trying not to worry, but I have been through so many things health-wise, that I am so frustrated that when I start showing improvement in one area, that something new starts happening!!!!